BOARD

Louis Songster, Secretary, served as Executive Director of Philanthropy at State University of New York’s Downstate Medical Center for seven years, where he raised funds for research, education and patient care. He co-founded Yellow Magnet, a consulting firm that helps social change organizations convert awareness to action. Louis has several friends with Lyme disease.

Regina Weichert, Founder and President, is a writer and producer who contracted Lyme in 2004, treated it promptly with antibiotics and was told that she was “cured.” It took five years to find out that she still had Lyme. So sick that she could barely stand up, Regina was fortunate to find a Lyme literate doctor who saved her life, and to recover with the help of cutting edge treatments from around the globe. She founded Lyme Nation with a vision of replacing the ignorance, denial and neglect surrounding Lyme with knowledge, compassion and a new global response to the disease. Regina has a B.A. from Harvard University and an M.S. in Fundraising and Grantmaking from New York University, where she studied non-profits’ use of social media and innovation in the healthcare sector.

Jonathan Zinno, Treasurer, is a Director at Price Waterhouse and Cooper, with expertise in Mergers and Acquisitions, Strategy, Leadership and Performance. His main focus is Pharmaceuticals, Life Sciences and Healthcare, where he has been involved in a number of complex transactions. Jon is also a founding member of CareooTM – a healthcare start-up that is working to create better patient outcomes in the comfort of the home. Jon has a B.S. from Providence College, an M.B.A from Columbia Business School, and he also attended the London School of Economics. His great-uncle has had Lyme disease for 30 years.

ADVISORS

Patricia K. Coyle, MD, FAAN, FANA, is Professor and Vice Chair (Clinical Affairs) of Neurology, and Director of the Multiple Sclerosis Comprehensive Care Center at Stony Brook University Medical Center, Stony Brook, New York. She received a BS degree with highest honors from Fordham University, Bronx, New York, and an MD degree from the Johns Hopkins School of Medicine, where she was elected to Alpha Omega Alpha. While at the Johns Hopkins School of Medicine, she completed a residency and chief residency in neurology, followed by a two-year fellowship in neurovirology and neuroimmunology. She then went on to establish a successful research laboratory in addition to building a busy clinical practice at the Stony Brook University Medical Center. Dr. Coyle is the author of numerous articles on clinical and basic research aspects of neurologic infections and multiple sclerosis (MS). She is recognized as a leading expert in the areas of Lyme disease and neurologic infections, cerebrospinal fluid, therapeutics, and neuroimmunology. Her research has been supported by the National Institutes of Health and other organizations. She is currently involved in studies addressing neurologic aspects of Lyme disease, and therapeutic trials testing new immunotherapies for MS. In addition to her busy clinical and research careers, she has held active leadership positions in a number of national and international organizations and academic societies, including the American Academy of Neurology, American Neurological Association, National MS Society, and the American Board of Psychiatry and Neurology. She served on the FDA CNS/PNS Advisory Panel and currently serves on the Southampton Hospital Tick Resource Center Advisory Panel. She lectures widely on neurologic infections and MS to national and international audiences.

Martine Davis, Environmental Health Advisor, is President of Indoor Environmental Testing, Inc., the company she founded in 2000. A software engineer for 20 years, Martine was drawn to study environmental health after she suffered a devastating illness later found to have been caused by a “sick home.” At the time, little was known about environmental illness. She was mis-diagnosed with several diseases and not given much hope for recovery. Martine is Certified as a Building Biology Environmental Consultant by the International Institute for Building Biology & Ecology. She is a graduate of Illinois State University, is IAC2 Certified by InterNACHI, has held certifications as a Certified Indoor Environmental Consultant (CIEC), Certified Microbial Investigator (CMI), Certified Residential Mold Inspector (CRMI) and was a licensed Lead Inspector and Risk Assessor for the State of Illinois. Her expertise includes indoor air quality inspections, mold and moisture investigations, sick building issues, odor investigations and countermeasures for electromagnetic and high frequency radiation exposure. Having fully recovered her health, Martine teaches Indoor Air quality classes nationwide, and consults to individual and institutional clients. She frequently works with Lyme patients who are having mold, EMF and other issues in their homes.

Bob Filbin, Advisor, is Chief Data Scientist at Crisis Text Line, where his goal is to use data science to maximize both the number of teens using the service and the quality of care they receive. Bob has a keen interest in developing pro-social applications of data, and has spoken about data science for social change at SXSW Interactive, Strata Conference, and MIT, and has been published in the Harvard Business Review. Bob has his M.A. in Quantitative Methods in the Social Sciences from Columbia University and his B.A. from Colgate University. Bob has a friend with Lyme disease.

Dietrich Klinghardt, MD, PhD, Medical Advisor, is internationally known for his successful treatment of chronic pain and illness. His treatment modalities include non-surgical orthopedic medicine, immunology, endocrinology, toxicology, neural therapy, hypnotherapy and energy psychology. Dr. Klinghardt studied medicine (1969 – 1975) and psychology (1975 – 1979) in Freiburg, Germany, completing his PhD on the involvement of the autonomic nervous system in autoimmune disorders. While working in India as a junior physician, he encountered Eastern concepts of disease and blended them with his Western training.

Since the 1970s, Dr. Klinghardt has contributed significantly to the understanding of metal toxicity and its connection with chronic infections, illness and pain. He is considered an authority on this subject. He also developed Autonomic Response Testing (ART), a comprehensive diagnostic system that has helped many practitioners to become accomplished holistic physicians.

Dr. Klinghardt has lectured at the universities of Illinois, Utah, Freiburg, Adelaide, Capital University and others, and at the medical schools of Geneva and Zurich. Between 1996 – 2005 he was Associate Professor at the Department of Applied Neurobiology at Capital University. He is regularly invited to teach workshops at the prestigious Medicine Week in Baden-Baden, Germany. Among his books is the groundbreaking Psychokinesiology: A New Approach in Psychosomatic Medicine, on muscle feedback-guided psychotherapy.

Dr. Klinghardt contracted Lyme disease as a boy, so he has been living with the illness himself for over 50 years.

Orson Munn, Advisor, has been in Marketing and Advertising for the past thirty-five years, and founded his shop, Munn Rabôt, twenty years ago with partner Peter Rabôt. Having worked on travel and tourism, financial, education and many other categories, Orson believes the most difficult marketing assignments are those found in healthcare. He has repositioned and brought hospital marketing to a new level with NewYork-Presbyterian Hospital, NYU Langone Medical Center, Yale Medical Group, and Brigham and Women’s Hospital. Orson believes that his father may have passed away from a case of Lyme disease that was improperly diagnosed as Parkinson’s.

Peter Rabôt, Advisor, is Creative Director and founding partner of Munn Rabôt – a New York advertising agency. Originally from London, UK, he moved to the United States in 1984. Peter has created effective advertising campaigns for many business categories, and is best known for his work for New York-Presbyterian Hospital and now, NYU Langone Medical Center. He believes brands need to embrace a position and stand for something. He developed the idea, “Lyme disease is killing us,” for Lyme Nation.

Dr. Armin Schwarzbach, MD, PhD, Medical Advisor, is founder of the laboratory ArminLabs, in Augsburg, Germany. Dr. Schwarzbach developed the worldwide first Radioimmunoassay (RIA) for human Gastric Inhibitory Polypeptide (hGIP) from 1986 – 1991, getting his PhD in 1992. By 1993, Dr. Schwarzbach began specializing in laboratory medicine in microbiology, immunology, hematology, clinical chemistry, endocrinology and gynecological endocrinology.

In 2013, Dr. Schwarzbach was appointed as the International Expert for the Chief Medical Officer´s Clinical Advisory Committee on Lyme Disease in Australia (CACLD) of the Australian Government. The Joint Committee on Health and Children, Dublin invited him for a hearing about Lyme disease in Ireland. He was member of the working groups for Lyme disease of the Haut Conseil de la Sante Publique, Paris, France and the Complex Chronic Diseases Program BC, at the Women’s Hospital and Health Centre, Vancouver, B.C., Canada. In January 2015, Dr. Schwarzbach was a keynote speaker at the Lyme Disease Parliamentary meeting in the House of Commons, London, England.

George Weiner, Advisor, is the Founder and CEO of WholeWhale.com, and an adjunct professor at NYIT. Prior to WholeWhale.com, George was the CTO of DoSomething.org. Under his leadership, the organization became an innovator in social media, mobile technologies and social cause. During his 7 years at DoSomething.org, he oversaw the complete overhaul of the site twice (winning a Webby Award and nominations), helping to build a community of over 1.5 million young people taking action. George had a Lyme disease scare. He turned out not to have Lyme, but experienced first-hand the difficulty of getting an accurate diagnosis.